Action for A-T funds research to help find hope for children suffering from Ataxia Telangiectasia. Ataxia Telangiectasia is a rare, genetic disease that becomes noticeable at the age of 4 when the child starts to walk, and can be identified by the unsteadiness that the child encounters when walking.
As a progressive disease, it begins to get worse as the child gets older. Their immune system is weakened and can they can become susceptible to respiratory disorders.
Many of the people who are diagnosed with A-T have chronic lung infections as well as having an increased risk of developing cancer (in particular leukemia and lymphoma).
Unfortunately, those who suffer from it have a short life expectancy of just 25 years old.
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Stories of people effected by A-T: